Between 2018 and 2021, in the framework of the EIN we organised monthly sessions with experts in multidisciplinary care – haematology, physiotherapy, nursing care or psychosocial care – under the title “Happy 1/2 Hour with an Expert in Haemophilia Care”.
The past sessions focused on following themes (follow the links to access short, downloadable articles):
1 November 2018: Importance of the dental care for haemophilia patients with inhibitors
29 November 2018: Physiotherapy and the joy of movement – the risks and benefits for people with inhibitors
31 January 2019: Surgery for people who have haemophilia with inhibitors
28 February 2019: Psychosocial questions in inhibitor care
25 March 2019: Home treatment and Self-infusion
25 April 2019: Employment issues
30 May 2019: Parenting a child with inhibitors
25 June 2019: Pain management
25 October 2019: Fitness for people with inhibitors
10 February 2020: How to become an expert patient? Communication with your NMO and HTC
25 March 2020: Adaptive devices to make life easier!
22 April 2020: Emicizumab. Practical aspects and implications
25 May 2020: Gene therapy prospects for people with inhibitors
22 June 2020: How to care for those who care? Care for caregivers
25 September 2020: Children asking their questions about inhibitors
28 October 2020: Immune Tolerance Induction (ITI) and emicizumab
25 November 2020: Impact of COVID-19 crisis on people with inhibitors
25 February 2021: How to find the light at the end of the tunnel – psychosocial impact of COVID-19
25 March 2021: Inhibitor Connection: People with inhibitors in the life of their National Member Organisation (NMO)
25 May 2021: The importance of physical activity during COVID-19 pandemic
28 June 2021: Access to multidisciplinary care
Gradually, we are transforming the past “Happy 1/2 Hour with an Expert in Haemophilia Care” sessions into podcasts. Some of the sessions already available on the Sound Cloud playlist.
