This is a closed discussion space offered by the EHC and is open to people with haemophilia who have inhibitors, their families and caregivers, and healthcare professionals.

Registration is required to participate in the discussions. Reading the messages is possible without registration, unless the author of the message has restricted the post only to registered users.

The content of the messages is solely the responsibility of the member posting the respective message. By checking the box under this text and clicking on “register”, you express your unconditional agreement to the following rules. The moderator of the forum reserves the right to remove the message if the rules are violated and to expel the member if the rules are repeatedly violated. Before any exclusion of a member, the moderator will send a notification warning.

Forum channel descriptions 

Patients

This channel is dedicated to people with haemophilia who have inhibitors. This is a place to exchange stories, share experiences and build friendships.

Please be as clear and precise as possible in the subject lines of the new discussion threads, and keep one subject per discussion thread. This will help to avoid confusion.

When writing messages, be short and clear, avoid slang and abbreviations that might not be understood by everyone. Please take into account that English most likely will not be the first language for most of the members of this discussion space.

Parents and caregivers

This channel is dedicated to parents and caregivers to exchange your experiences, day-to-day concerns and seek peer support!

Please be as clear and precise as possible in the subject lines of the new discussion threads, and keep one subject per discussion thread. This will help to avoid confusion.

When writing messages, be short and clear, avoid slang and abbreviations that might not be understood by everyone. Please take into account that English most likely will not be the first language for most of the members of this discussion space.

NMOs

This channel is dedicated to discussing initiatives and activities for people with inhibitors. Here you might share the best practices, activities you do, methods you use, as well as learn from each other on how to implement new initiatives.

Please be as clear and precise as possible in the subject lines of the new discussion threads, and keep one subject per discussion thread. This will help to avoid confusion.

When writing messages, be short and clear, avoid slang and abbreviations that might not be understood by everyone. Please take into account that English most likely will not be the first language for most of the members of this discussion space.