Tue, 05 Dec 2017 15:46:21 GMT
Dear all at EHC and attendees...
I just wanted to say a massive thank you to you all for organising such an incredibly useful summit this weekend. It was so wonderful to spend time learning about inhibitors, how they occur, why they persist, how they can be treated and much, much more. The seminars were great as were the peer to peer sessions. It was amazing to see the differences in care across Europe and how we can work together to try and level that out more. The children had a fantastic time too - really informative and enjoyable for us all.
Thanks so much to everyone for all your hard work and effort to make sure this really felt like a safe place to share and learn and just be together with others who understand.
Lisa Miller and family (and Inhibitox!)
Wed, 06 Dec 2017 20:55:04 GMT
We will also say thank you to all of you that made this week-end possible with a lot of interesting sessions, meetings and stories. Ann, Mattias and Wilhelm from Sweden