Mon, 04 Dec 2017 16:49:02 GMT
Hello, Mark Kirkham here (James and Zoe's Dad)
I just wanted to say hello and apologies if I didn't get to say goodbye to everyone, unfortunately we were on a lunchtime flight so left quite early.
Thanks to all the staff of Barretstown, the twins had a fabulous weekend and did not want to leave.
To the Amanda and the EHC thanks for putting on such a well planned weekend, I loved the medical talks and updates on the various medications. Just like last year it was great to meet and share with other families and hopefully this community will grow to become a place full of advice and sharing for those with haemophilia and inhibitors.
James has is now six and has had inhibitors pretty much since day one , he currently has a hickman line and is on 4000UI of Fandhi each day. Feel free to ask any questions.