Thu, 05 Apr 2018 17:30:53 GMT
Hello everyone!! I wanted to share some great news with you all :) The Orphanet Journal of Rare Diseases have officially confirmed the publication of the EHC's European Principles of Inhibitor Management. This means that there will be guidelines published in a peer reviewed medical journal presenting the best ways and optimal treatment that people with inhibitors should receive across Europe! This is a really exciting development and we would love to hear your feedback or what this may mean for you!!!! Here at the EHC we know what is included in the principles, but we would love to hear what you all think should be included as best practice for people living with inhibitors?! Stay tuned for more information - you'll read it here first!