Noora
Wed, 29 Nov 2017 19:31:18 GMT
HI! We met last year in Dublin. I have a 14 year boy and I'm sorry to say we are in the same situation as you. 3 years ago we started with Rituximab/Mapthera and every 5 or 6 month we do it again, slowly. slowly maybe we see some result - the high level is not so high.... Let's talk more in the week-end, I understand you are going to Barretstown again. :-)
Hi Noora, I can't imagine how fed up you are after all those years....we are only just coming up to our first year and are bored already....not used Rituximab yet as still holding out hope......