The programme of the European Inhibitor Network (EIN) has been designed specifically for people with inhibitors and built with a variety of different elements that are implemented with the support of the leading experts in haemophilia treatment and care.
We think it is essential that people with haemophilia who have inhibitors receive the necessary information, support and education, as well as make their voices heard in order to receive the optimal treatment and care, regardless the country they live in. Share the information about the EIN with other people with inhibitors in your country, so that they can join in too!
It is important to collaborate closely with EHC National Member Organisations (NMOs) in order to ensure the exchange of information and experiences and develop a functioning network on a grassroots level.
To facilitate this process, each EHC NMO was asked to nominate a person to be the NMO Inhibitor Ambassador.
Inhibitor Ambassador is the active link between the people with inhibitors in his/her country and the EIN on the European level. He/she
- Follows the developments in the EIN and informs the NMO regularly;
- Promotes the various EIN activities within the NMO;
- Shares the information about relevant initiatives/publications on the national/ regional level within the EIN.
Currently there we have Inhibitor Ambassadors in following countries: Austria, Croatia, Czech Republic,Estonia, Finland, France, Germany, Ireland, Kyrgyzstan, Montenegro, the Netherlands, North Macedonia, Poland, Portugal, Romania, Serbia, Slovakia, Slovenia, Sweden, Switzerland, UK, Ukraine.
Contact the Inhibitor Ambassador in your country to find more detailed information about inhibitor treatment and management in your country or to get in touch with other people and families affected by inhibitors, as well as to get involved in the inhibitor community locally and benefit from the EIN activities.
If your country does not have an Inhibitor Ambassador yet, contact European Inhibitor Network coordinator, Ms Kristine Jansone on firstname.lastname@example.org! Or better yet – become an Inhibitor Ambassador in your country! Here you can read more about this role.