On 25 March 2019 the “Happy 1/2 Hour with an Expert in Haemophilia Care” focused on home treatment and things that are linked to that, for example, self-infusions, how to best guide the children into self-infusion. We had invited paediatric haematologist Dr Beatrice Nolan and haematology nurse Ms Mary Kavanagh from Our Lady’s Children’s Hospital in Crumlin, Ireland.
The subject of home treatment is very interesting for people with inhibitors, especially, if they are on prophylaxis with bypassing agents or are undergoing Immune Tolerance Induction (ITI) therapy, as both of these involve frequent infusions. The session was very well attended and stretched out well beyond 30 minutes.
To start with, we looked at Benefits_of_home_treatment as such and how to facilitate the infusion in the case of high frequency of infusions. Our experts agreed – the more the child and the parents can stay away from hospital, the better!
A very long discussion evolved around Children_and_self-infusion and Helping_parents_learn_to_infuse_their_child, with some quite challenging situations discussed, but also very good advices received 🙂
Finally, Emicizumab_and_new_challenges that it may bring to the home treatment training was touched upon.
We send two million thanks to Dr Nolan and Ms Kavanagh for the lovely and very educational chat!