Annual EHC Inhibitor Summit
One of the most important objectives of the European Inhibitor Network (EIN) programme is to build and maintain a network of people with inhibitors, their families and caregivers from across Europe. Building a community for this group of patients on a European level is essential, as the numbers nationally are too small and thus prevent EHC National Member Organisations (NMOs) from offering them meaningful support.

By organising an annual Inhibitor Summit, the EHC offers a special time and space for people with haemophilia who have inhibitors, as well as their family members and caregivers, to build a community, educate and empower themselves and to improve the quality of their lives, as well as enable them to become their own strong network.

The Summit programme is different every year and allows for both returning participants and those that are joining for the first time to benefit. The programme is built in a way that accommodates a variety of needs and includes different elements, starting from the latest updates on treatment possibilities, to small group discussions for exchange of information among peers, and leisure activities for the young generation of participants. All this contributes to the aim of building a vibrant community!

Inhibitor Summit 2016
The first Inhibitor Summit organised by the EHC took place from 1-4 December 2016 in Barretstown, Ireland – a facility founded by the American actor Paul Newman as a place designed for children living with a serious illness and their families.

The event brought together more than 100 participants, speakers and facilitators from 26 countries in Europe and beyond. The participants were of all ages and included children with inhibitors, their siblings and parents, as well as adults with inhibitors and their caregivers. All of them brought and exchanged their different experiences and practices. The programme combined short scientific lectures with practical work including on the sources of physiotherapy and pain management.

For better insight, you can visit the photo gallery of the event here.

The Summit and the EIN in 2016 were made possible thanks to educational grants from Shire.


Inhibitor Summit 2017
After the great success of the first Inhibitor Summit, the EHC was excited to organise the second edition. Once again, the event was held in Barretstown, Ireland, from Thursday 30 November in the evening until Sunday 3 December lunchtime.   

Similarly to 2016, the Inhibitor Summit 2017 brought together over 110 participants, speakers and facilitators from 27 European countries. Participants included adults, children, patients, partners, siblings and relevant experts – allowing the group to learn, share and enjoy the community spirit that is becoming evident within this group!

The programme of the Inhibitor Summit consisted of both informational and practical workshops. An important part of the programme will always be dedicated to peer-to-peer sessions and exchange between the participants.

In addition, the winner of the “Inhibitor Superhero” competition was announced at the end of the Summit!

For better insight, you can visit the photo gallery of the event here.

The Summit and the EIN in 2017 were made possible thanks to educational grants from Alnylam, Roche and Shire.