You will remember that 5 years ago, when the EHC launched EIN programme, we carried out a survey aimed at individuals with inhibitor and/or their caregivers – with an aim to map the needs and challenges they are facing on a daily basis. As the objective of the EIN is to improve the treatment and care, as well as to increase the quality of life of people with haemophilia who have inhibitors, the survey helped to design this programme in a way that would correspond the actual needs of the people with inhibitors and their caregivers.
Now, five years later we would like to re-assess our work and see what kind of work needs to be done to continue with a programme that is truly beneficial for the inhibitor community in Europe. For this reason we are re-launching the same survey to see what developments have taken place. Please help us assess the situation by answering the short survey!
Thank you so much in advance!
