At the time when the novel treatment options are available or on the horizon for many, there are still a lot of challenges that are not solved solely by the treatment. The extensive joint damage that the older generation of people with haemophilia has suffered and that brings with it a certain amount of pain and discomfort, requires support systems in place in order to maintain decent quality of life.
Also the patients with haemophilia and inhibitors that are of younger age, but have not had the opportunity of a good treatment, suffer similar consequences and need certain techniques to be able to successfully function in the work environment.
Finally, with the improvements in the treatment landscape, we are facing the first generation of ageing patients with haemophilia, that brings along another set of challenges concerning independent living!
Many of these challenges can be addressed by Adaptive advices to make life easier! For the “Happy 1/2 Hour with an Expert in Haemophilia Care” this month we have invited physiotherapist, Dr Ruth Mulvany, to speak with us about adaptive devices and to some extent also about home adaptations. Join us on Wednesday, 25 March at 19:00 Brussels time!
This event will be a closed video conference. To join please register here.
Dr Ruth Mulvany, PT, DPT, MS, has served as the physical therapy consultant to the University of Tennessee Hemophilia Treatment Center and as associate professor in the Department of Physical Therapy. She has over 30 years of experience in management of Hemophilia and bleeding disorders and has received both the National Hemophilia Foundation Excellence in Physical Therapy Fellowship Award and The Physical Therapist of the Year Award. Her experience in hemophilia includes treatment, education and research with both adults and children. She has worked with the Centers for Disease Control, McMasters’ University Panel for Hemophilia Guidelines, the Hemophilia Federation of America, the National Hemophilia Foundation, and Coalition for Hemophilia B, and MedScape. She has served as a member of the NHF Physical Therapy Working Group, as Co-Chairman of four NHF annual meetings and as the Regional Representative for the Southeast Region. She has presented on research and management of bleeding disorders nationally and internationally. Ruth enjoys living in North Carolina with her husband, family, grandchild and 2 dogs.
